Robert Wood Johnson Foundation – Health Data for Action: Leveraging Health Data for Actionable Insights (Data Access Award)

Datasets available

• Health Care Cost Institute (HCCI):  Data, contributed by national insurers Aetna, Humana, and UnitedHealthcare, consist of fully adjudicated, paid, de-identified medical and pharmacy claims and include patients’ and providers’ geography, provider specialty, service dates, diagnostic and procedure codes, prescription drug codes, and allowed amounts plus any co-payments, deductibles, or co-insurance paid by the insured person.
• OptumLabs:  Includes de-identified claims data for privately insured and Medicare Advantage enrollees in a large, private, U.S. health plan. The OptumLabs Data Warehouse (OLDW) contains longitudinal health information on enrollees, representing a diverse mixture of ages, ethnicities and geographical regions across the United States. Data are available for the years 1993-2017 representing more than 120 million lives. The OLDW includes claims for physician, hospital, and prescription drug services.
• CareJourney Network Advantage Data:  Through an approved IRB, CareJourney data scientists access and run analytics on the Center for Medicare and Medicaid Services (CMS) Chronic Conditions Data Warehouse (CCW), inside of CMS’s own SAS environment. This data comprises roughly 50 million lives worth of longitudinal data. CareJourney also has access to the Medicare Shared Savings Program (MSSP) Accountable Care Organization (ACO) assignment and physician roster information for the entire country.
• Athenahealth:  Claims data and, in many cases, clinical data on more than 62 million patients seeing athenahealth providers today. This data includes not only information on those with insurance, but on the uninsured, as well. athenahealth is a cloud-based network, so it can access data in near real time and provide timely data on today’s most relevant health questions. athenahealth plans to share with researchers a de-identified dataset that includes BMI readings (with BMI z-scores for pediatric patients) from 2012–2017 for each visit to an athenahealth provider.

• Researchers, as well as practitioners in the public and private sector working with researchers, are eligible to submit proposals through their organizations. See data provider descriptions in the CFP for specific eligibility criteria.
• Projects may be generated from disciplines including health services research; economics; sociology; program evaluation; political science; public policy; public health; public administration; law; business administration; or other related fields. Use of the data under this CFP is restricted to noncommercial purposes.
• Preference will be given to applicants that are either public entities or nonprofit organizations that are tax-exempt under Section 501(c)(3) of the Internal Revenue Code and are not private foundations or Type III supporting organizations. The Foundation may require additional documentation.
• Applicant organizations must be based in the United States or its territories.